Inaugural Meeting of EMECC

The first CPD-accredited European ME Clinicians Council workshop took place over three days in London in February 2019. - International clinical and research experts participated in the first-ever European ME Clinicians Council on February 22–24, 2019 in London.
The EMECC conference brought together clinicians from across Europe from various disciplines to develop a European foundation of high-quality clinical expertise for this debilitating disease, for which there is much misinformation and where the lack of any effective treatment is currently deleteriously influencing healthcare agencies.

EMECC-1 London February 2019

1

NAME

Discussions on different names used and issues behind them.

2

DIAGNOSIS

A comprehensive discussion on diagnosis took place including criteria used, definitions, research evidence, how doctors daignose and what tools there are to use, symptoms and signs etc.

3

TREATMENT (SUPPORTIVE MANAGEMENT)

Sub groups, current and possible treatment options, doages for certain drugs, clinical experience were discussed.

4

FOLLOW UP INVESTIGATIONS

This segment discussed what to follow, functioning in real life, pilot studies, and scales of disability were proposed.

4

EDUCATION

Education of doctors,medical students, a summary of ongoing research and standards.

5

NEXT STEPS

Many action points arose from the three day meeting. A summary of the different points, research activities, sharing of data and samples and future research. The next meeting was agreed.

EMECC

The European ME Clinicians Council (EMECC) is a network of European clinicians with experience and expertise in treating and diagnosing patients with myalgic encephalomyeltis (ME).

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